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A young man with a nasal cannula sits in a chair, smiling while looking out a sunny window in a room with plants and a bookshelf, a walker nearby.

Bien qu'Alexander souffrît d'une maladie chronique l'empêchant de bien digérer les aliments et lui causant des douleurs chroniques, nécessitant une sonde nasogastrique et l'utilisation d'aides à la mobilité, il menait une vie relativement normale, hormis les jours de crise ou lorsque sa sonde nasale se bouchait parfois. Alexander était atteint d'une pseudo-obstruction intestinale chronique sévère, une maladie rare qui empêchait son système digestif de fonctionner correctement. Son intestin se comportait comme s'il était bloqué alors qu'aucun obstacle réel n'était présent. Les aliments avançaient très lentement, provoquant des douleurs constantes, des nausées et une grande fatigue. Avec le temps, son corps n'avait plus été capable de recevoir assez de nutriments uniquement par la nourriture. Depuis son enfance, Alexander avait grandi avec cette maladie. Petit, il mangeait difficilement, prenait peu de poids et passait beaucoup de temps chez les médecins sans vraiment comprendre pourquoi son corps ne fonctionnait pas comme celui des autres. À l'adolescence, les crises étaient devenues plus fréquentes et les repas étaient parfois synonymes de douleur. Il avait finalement dû commencer une alimentation par sonde, d'abord difficile à accepter, puis devenue une partie de son quotidien. Aujourd'hui, il était principalement nourri grâce à sa sonde nasogastrique, avec une alimentation liquide adaptée qui lui apportait les calories et les nutriments dont son corps avait besoin. Il Voir plus

#portrait #home interior #healthcare

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